The first pass of chemotherapy medication was 150 MG of Temozolomide every day for 42 days concurrent with the 30 days (week ends off) of radiation therapy. That ended about three weeks ago. The MRI was as expected with no cancer visible outside the original tumor that was removed. An MRI does not have the resolution to see the spreading cancer until it grows larger and more dense.
The new 4 week regimen will be 5 days of 300 MG of Temozolomide followed by 23 days of no medication. An MRI is scheduled every eight weeks.
I've been taking 4 MG a day of the steroid Dexamethasone since the beginning of treatment. The steroid was to prevent brain swelling. The MRI showed no evidence of any swelling in the brain, so I'm now off the steroid!!!. I can't imagine why anybody would take this steroid by choice. You don't sleep. Your bones are soft so if you tweak a knee, it doesn't heal. Bruises and cuts don't heal. They give you energy, but it's not real in that your muscles get weaker and weaker. If you work out too hard, you get injured. At least that's my experience.
So, my body is a mess right now. I'm unable to do more than a few hours a day of anything physical. So, I pick and choose what I use my limited energy for. I'm hoping to remedy this now that I'm off the steroids.
My mind seems to be working fine though. I seem to have recovered a good portion of my short term memory that I was missing after the radiation ended. My spelling seems fine again. I still have lost words, but that's from removing the tumor. One odd thing occurs as my brain remakes connections is that random and often annoying songs (like old Beatles tunes I'd rather forget) get stuck in my head and won't go away.
I guess that's enough info for today.
I read aloud page 74 of 531 of the Book of Mormon today. Jacob teaches us about the judgement, the resurrection and the atonement of Christ. If we will "hearken unto his voice" we are saved because of the atonement.
Thank you Don, I love reading your thoughts!
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